What this site is for
If you are a C6 male quad who likes the idea of independence but can’t get it, or you are being told you can’t, this site will give you instructions.
Its not meant to be some dodgy new age motivational self help book. Its a practical ‘how to’ guide that shows how I, as a C6 quad, do the every day tasks that all humans have to do.
Included in the list of tasks are things like, travel, work, going out and sex, because these are the basic things we need to do just because we are human.
What this site is NOT for
I am a C6 male quad and the site is solely based on my individual experience. I have not and will not try to generalise it in anyway, or even ground truth its accuracy as far as other individuals are concerned. If you find it is not relevant to you, or wrong, or offensive, simply move on to some other website.
It is deliberately expressed from the male perspective. This is not due to an oversight or an assumption. It is because the male experience of being a C6 is all I know, and I suspect quite a lot of the experience is different for women. In addition, I don’t presume to speak for anyone other than myself, in particular I don’t presume to speak for women. However, if some or all of it is of relevance to female quads that will be great.
How this site works
The page buttons above, which are repeated in the links below, will take you to a page on each issue. On each page you will find
Usually some pictures and/or videos
What the experts say
My rule number x
Why create this site?
I became a C6 quad as a result of a diving accident. It happened at a beach in 1986. I have lived completely independently since 1989 – 25 years.
I was motivated to make this site after speaking with a few friends who are very experienced spinal injury professionals. They told me two things that I found surprising. Firstly they said that in their careers they had come across somewhere between zero and one other C6 that lives independently like me. Secondly they said people who become C6s in the 21st century are not encouraged to, or even told they can, become independent.
Examples of spinal injury professionals saying independence for C6s is impossible include apparalyzed and medicine, and worst of all the consortium for spinal cord medicine. Fortunately they don’t all have that view. Experts that have a different view include spinalhub and spinal injury net.
It seems to me that this ‘don’t even try’ approach is very unfortunate for the C6s being advised by these organisations, and much less importantly, unnecessarily expensive for governments and insurers.
Obviously its up to each C6 to determine their own life, however if you do not know the options available you cannot make an informed choice. For this reason I thought it would be potentially useful and important for those recent C6s, and spinal injury professionals, to be shown that independence is possible for C6s.
Once C6s view the site I am hopeful they will get an understanding of what can be done and how. They will then be in a position to make an informed decision about the level of independence that suits them, and work towards that.
In other words, they will be able the choose their own destination and make their own horizons, rather than being at the mercy of a professional’s opinion about where their limits lie.